Community Engagement Group Model in Basic and Biomedical Research: lessons learned from the BEAT-HIV Delaney Collaboratory towards and HIV-1 cure
Research Involvement and Engagement (2023)
Dubé, K., Peterson, B., et al.
Creation of a tri-partite Comunity Engagement Group for HIV Cure research at the Wistar Institute, partnership with a CBO, and an independent CAB (Philadelphia, PA, USA).
Community Engagement Group Model in Basic and Biomedical Research: lessons learned from the BEAT-HIV Delaney Collaboratory towards and HIV-1 cure
Research Involvement and Engagement (2023)
Dubé, K., Peterson, B., et al.
Creation of a tri-partite Comunity Engagement Group for HIV Cure research at the Wistar Institute, partnership with a CBO, and an independent CAB (Philadelphia, PA, USA).
The Impact of Patient and Public Involvement on COVID-19 Immunology Research: Experiences from the UK Coronavirus Immunology Consortium
Research Involvement and Engagement (2023)
Aquino, E.N., Moss, P., et al.
Case study of how patient and public involvement in COVID research throughout research cycle supported the success of the research endeavor.
Reflections of Patient and Public Involvement from a Commissioned Research Project Evaluating a Nationally Implemented NHS Programme Focused on Diabetes Prevention
Research Involvement and Engagement (2023)
Hawkes, R.E., Sanders, C., et al.
Lessons learned from a national PPIE programme – clear roles of advisors, long-term PPIE, support for substantive participation (training, resource, time).
Proactive Strategies to Optimize Engagement of Black, Hispanic/Latinx, Transgender, and Nonbinary Individuals in a Trial of a Novel Agent for HIV pre-exposure Prophylaxes (PrEP)
PLOS One (2022)
Cespedes, M., Das, M., et al.
Formation of a GCAB to support PURPOSE PrEP trial, including protocol changes made.
Editorial: Public and community engagement in health science research: Openings and obstacles for listening and responding in the majority world
Frontiers in Public Health (2022)
Black, G.F., Cheah, P.Y., et al.
Community Engagement case studies in different kinds of health research contained in the issue of the Journal – August 2022. None of the articles reference GPP.
Increasing Black, Indigenous and People of Color Participation in Clinical Trials through Community Engagement and Recruitment Goal Establishment
PLOS ONE (2021)
Andrasik, M.P., Broder, G.B., et al.
Community engagement to recruit diverse populations into COVID vaccine studies.
Beyond Recruitment: Good Participatory Practice enhances the impact of research in a pandemic
Nature Medicine (2021)
Wilson, B., Wright, K., et al.
Case studies of GPP used for Ebola and COVID.
Standardized Metrics Can Reveal Region-Specific Opportunities in Community Engagement to Aid Recruitment in HIV Prevention Trials
PLOS ONE (2020)
Broder, G., Lucas, J., et al.
Assessment of recruitment methods in AMP (Phase III vaccine trial).
Africa: A scoping review
Journal of the International AIDS Society (2020)
Asuquo, S.E., Tahlil, K., et al.
Scoping review of youth engagement in HIV prevention research, used GPP Implementation model (WITS RHI) to categorize engagement activities.
Community Inclusion in PrEP Demonstration Projects: Lessons for Scaling Up
Gates Open Research (2019)
Reza-Paul, S., Lazarus, et al.
Case studies of GPP used for PrEP demonstration projects and implementation.
Collateral Benefits: how the practical application of Good Participatory Practice can strengthen HIV research in Sub-Saharan Africa
Journal of the International AIDS Society (2018)
Baron D., Essien, T., et al.
Lessons learned from seven years of formal GPP implementation at WITS RHI and in the region.
Implementing the Good Participatory Practice Guidelines in the Girls Achieve Power Trial in South Africa
Reproductive Health in Sub-Saharan Africa – Original Research (2018)
Kutywayo, A., Yah, C.S., et al.
GPP applied in a RCT for reducing school dropout and increasing reporting of DV through girls empowerment programming.
Village Community Mobilization is Associated with Reduced HIV Incidence in Young South African Women Participating in the HPTN 068 Study Cohort
Journal of the International AIDS Society (2018)
Lippman, S.A., Leddy, A.M., et al.
Measures association of community mobilization as protective against HIV, distinguishes this from GPP and talks about how they are related.
Testing the Waters: Ethical considerations for including PrEP in a phase IIb HIV vaccine efficacy trial
Clinical Trials (2015)
Dawson, L., Garner, S., et al
Community engagement to enhance ethical consideration of offering.
Towards a Science of Community Stakeholder Engagement in Biomedical HIV Prevention Trials: An embedded four-country case study
PLOS ONE (2015)
Newman, P.A., Rubincam, C., et al.
Case studies to test first version of the GPP principles in four sites.
Successful Disontinuation of the Placebo Arm and Provision of an Effective HIV Prevention Product After a Positive Interim Efficacy Result: The Partners PrEP study experience
Journal of Acquired Immune Deficiency Syndrome (2014)
Ndase, P., Celum, C., et al
GPP principles used to disseminate positive results in an efficacy trial.
Implementing Good Participatory Practice Guidelines in the FEM-PrEP Preexposure Propylaxis Trial for HIV Prevention Among African Woman: A focus on
local stakeholder involvement
Open Access Journal of Clinical Trials (2013)
Mack, N., Kirkendale, S., et al.
How GPP was implemented in FEM-PrEP (retroactive study).
Cognitive Mapping: Using local knowledge for planning health research
BMC Medical Research Methodology (2013)
Stadler, J., Dugmore, C., et al.
Use of cognitive mapping for participatory research to inform recruitment and retention for HIV prevention trials.
Engaging Community to Support HIV Prevention Research
East J Med (2011)
Sahay, S. & Mehendale, S.
Experience of creating a Community Involvement Plan for the National AIDS Research Institute in Pune, India.
Fostering Community Understanding of Sufficient Benefit and Early Stopping for a Phase 2B HIV Prevention Clinical Trial in Africa
Clinical Trials (2011)
White, R., Chilshe, M., et al.
Experience facilitating a Community Working Group workshop to garner community engagement into the stopping rules for thte VOICE Trial (Phase 2B, Microbicide).
Who is Helsinki?’ Sex workers advise improving communication for good participatory practice in clinical trials
Health Education Research (2011)
Ditmore, M.H. & Allman, D.
Assessment of sex workers’ knowledge and beliefs about research ethics and GPP.
Investing in the Future: Lessons learnt from communicating the results of HSV/HIV intervention trials in South Africa
Health Research Policy and Systems (2011)
Delany-Moretlwe, S., Stadler, et al.
Case Study: lessons learned from communicating about disappointing trial results (HSV-2 treatment for HIV prevention) in an environment where researchers had built trust with community members and policy makers.
Pre-exposure Chemoprophylaxis for HIV Prevention in Men Who Have Sex with Men
New England Journal of Medicine (2011)
Grant, R.M., Lama, J.R., et al.
Community involvement in design and implementation of iPrEx study.
Lessons Drawn from Recent HIV Vaccine Efficacy Trials
JAIDS (2010)
Fuchs, J., Sobieszczyk, M., et al.
GPP necessary for successful conduct of vaccine studies.