Putting people and Good Participatory Practice at the center of our work
More than 40 years of HIV prevention advocacy has demonstrated the essential role communities must play for the world to achieve epidemic control and advance global health. The history of HIV advocacy is unique; affected communities came together calling out their needs and demanding justice. The result has been a smarter, more equitable, more effective response to a global health threat than ever seen before.
AVAC connects the global response to the real needs of affected people, and we do this by:
Good Participatory Practice (GPP) is a flagship of this work. Guidelines AVAC developed in partnership with UNAIDS in 2007 provide a global standard for broad and inclusive stakeholder engagement in clinical trial research.
The inclusion of communities and civil society in the research enterprise is a core principle for ethical conduct of clinical trials, and essential to an effective Global response to HIV. The GPP guidelines have been adapted for clinical trials in other fields, including tuberculosis, COVID-19, and emerging pathogens.
At AVAC, we train trial staff on the guidelines, support their adaptation to other fields, prepare and support advocates to ensure the application of GPP in trial communities, and engage with the research community and ethics boards to maximize their use. Learn more about the GPP Guidelines here.
Since its first draft, the GPP guidelines have been adopted and used in HIV research and far beyond. AVAC has collected this body of evidence for GPP to demonstrate the power of GPP, to show how GPP can be measured and replicated, and to offer GPP training, tools and connection to everyone involved in the research enterprise.
report
Led by AVAC alongside a network of partners, the People’s Research Agenda puts forward recommendations to diversify and strengthen the HIV prevention pipeline, enhance investment and financial support for HIV prevention research and development, and guide an advocacy strategy that truly addresses the needs of communities across the prevention pipeline.
webinar
This webinar on September 11 featured speakers from around the world with experience implementing GPP at research sites, within networks, and at the sponsorship level.
factsheet
As members of the Coalition of Advocates for Global Health and Pandemic Preparedness, a group of organizations advocating for an integrated and holistic approach to preparedness that emphasizes equity, inclusion, and synergies of multiple global health programs in advancing preparedness, we share the following asks with regard to the ongoing Pandemic Accord negotiations after their extension past May 2024.
Ethical and effective stakeholder engagement throughout clinical trials and research agendas for HIV prevention and beyond.
Training US, European and African partners in advocacy to advance research and ultimately rollout of interventions related to HIV cure and prevention.
Manifesto to align HIV prevention research with trans and gender diverse realities.
A resource that provides background on the need for research in pregnant and lactating populations and how advocates can advance inclusion.
