With the increased abuse of technology in surveilling and criminalizing healthcare, especially abortion and gender affirming care, more and more people are asking: is my personal health data safe? People living with HIV and human rights advocates have been demanding answers to this question for years, particularly in relation to the collection, sharing, and storing of HIV genetic data without the consent of people living with HIV.
Kendra Albert, a public interest technology lawyer, will discuss the current state of health data privacy, especially as it relates to people living with HIV. Participants will learn basic concepts in health data privacy and what actions they can take to improve health data privacy on the state level. Moderator: Martha Cameron, International Community of Women Living with HIV (ICW), North America Presenters: Kendra Albert, Albert Sellars LLP Kae Greenberg, Center for HIV Law and Policy